Fibromyalgia

Sjorgen’s Syndrome?

I. Am. So. Ill. Today.

No Medical Marijuana news links for this week. I think I’m going to move to bi-weekly posts for that. Instead, a few notes about this crazy little autoimmune thingamajig I’m curious about: Sjogren’s Syndrome.

Point 1: Chatting with another Spoonie on Twitter this week, I was reminded that sometimes autoimmune diseases are sero-negative. I mean, I did know this already, but the conversation really got me thinking about how useless my bloodwork has been.

Point 2: Since I’ve mostly convinced myself that I have POTS, and since it is very often secondary to some other condition, I started looking into the possibility that I have some other primary illness that is sero-negative and not fibromyalgia. Perhaps something in addition to fibro or instead of fibro.

Point 3: I read up on Sjogren’s. (You may have read that Serena Williams has it.) I have so very many of its symptoms. There’s a lot of overlap in autoimmune and fibromyalgia symptoms though, so it’s anyone’s guess right now. Still I can check off too many of the items listed in this image from sjogrens.org to not ask my doctor about it.

sjogrens_body

Point 4: I was reading a study abstract (sorry, too tired to look it up and link it right now) that said that people with sero-negative Sjogren’s experience more intense symptoms. I have an appointment with my nurse practitioner (can’t see my primary doctor until late October, and that’s too long for me to wait) on Thursday. I might push for an MRI or see if there’s more we can do to investigate, since my blood isn’t giving up the goods.

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