Fibromyalgia

Fibromyalgia Update: Iron, Sleep Study, Nexium

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I haven’t been feeling well lately. I know, right? You are so surprised.

Thought I’d follow up with my progress in regards to the iron supplements and my fibromyalgia. Which is a pretty easy task, because there is no more progress to report. I’m still taking the supplements, and the burning in my legs and feet is less frequent. But the initial shot of energy and hope I had during that first week—hope that this was what was wrong with me—has all but completely fizzled.

I was anticipating a call from the sleep specialist this week to schedule the sleep study, but it didn’t happen. (The sleep study requires pre-auth from my insurance company, so I’m guessing there’s some negligence or outright denial of coverage on the part of my insurance provider.)

Whatever. I’m too drained to check on it. It’ll either happen or it won’t.

Nothing is happening as far as my getting into the MS Center at Illinois Neurological Institute either. My last move was to clarify whether my primary doctor’s office had simply put in a referral to my insurance (which is not required) or whether they had communicated with INI to start transferring my records to them (which is required).

Of course, my primary doctor’s office hasn’t responded to that question, which I asked nearly two weeks ago. I’m feeling more and more like my doctor and the nurse practitioner there just want me to wait for another scary episode and go to emergency. Proactive healthcare in this country is a fucking farce. It essentially consists of flu shots and colonoscopies after age 50.

If there’s one bright spot, it’s that I haven’t taken Nexium in 11 days, because I haven’t needed it. Doing without it hasn’t completely stopped my dizziness, but it’s lower. I feel like falling isn’t as likely right now. So there’s that.

 

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2 thoughts on “Fibromyalgia Update: Iron, Sleep Study, Nexium

    1. Yep and yep. I didn’t notice it immediately, I’ve been on it daily for over a year because my gastroenterolgist Rxed it. I didn’t realize it was affecting me like that until I accidentally skipped it for a few days. That’s when I realized that 1) I didn’t need it anymore, and 2) being off of it made me less dizzy.

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