Facebook tells me that on this day three years ago, Dan and I attended the Dave Matthews Band concert at Summerfest in Milwaukee. I remember it well. It was raining and only like 50° F outside. We could see our breath.
Fuckin’ Milwaukee, guys.
Anyway, we had lawn tickets but no chairs or blankets, because we weren’t anticipating the rain or the cold, slippery grass. So I stood for the entire show. For HOURS. I wiggled and danced for a bit, walked around a little. Then stood still. Then shifted my weight from one leg to another. Then started the routine all over again.
At the end of the concert, we had to walk back to the car. My legs were tired. The car was parked several blocks away, and I remember saying to Dan, “My legs feel weird. Like I can’t walk. I don’t know if I can make it all the way to the car.”
I had no clue what was happening to me at that time. I just thought it was exhaustion and that I was really and terribly out of shape. (Even though my height, weight, and activity levels were still leaning toward the decent side of healthy because I’m stubborn.)
At that point, I had already started seeing doctors about weakness and fatigue and a bizarre sort of limp that came and went, but I wouldn’t get a fibromyalgia diagnosis for about three more months.
I wouldn’t learn I had a brain tumor for a couple more years.
I did make it to the car without aid that night. But it was hard, and I remember stifling fears that something was really wrong with me. I remember plopping in the passenger seat and sort of lifting a leg into the car because it just wouldn’t.
Anyway, I wanted to take a moment this morning to say I’ve done a lot of really hard things with a tumor in my head—a tumor that I knew nothing about. Wonder what else I can do now that I know and have doctors that know how to fight it.