This week was wild. Not in a good way, and not even in a way that was anticipated. Tuesday my Mom and I were sharing a homemade smoothie, when things started feeling really weird for me, and I said, “Whass wrong wiff my tongue?” The TL;DR for those of you short on time is that for the second time in my life, a doctor has told me “I’m pretty sure it wasn’t a stroke.”
The first time was twenty years ago. Because eventually I determined that episode was a migraine, and I am inclined to believe that this episode is too. Though, if the symptoms that prompted the folks in the Carle Emergency Room to call a code stroke are migraine prodrome and aura symptoms, it’s the most horrible migraine I’ve had to date.
In fact, I still have the symptoms: my left side is experiencing all kinds of neuropathy ranging from pins and needles, to tingling, to burning, to numbness. My tongue isn’t working right, and I’m having a really hard time speaking clearly because I can’t articulate many interdental consonants—t, d, th.
It’s Saturday, so that’s going on five days now.
The muscles from my mid-back to the base of my skull are locked in a spasm. And I am this close to begging my doctor for a muscle relaxer to see if that will help any. So far I’ve just been taking Tylenol and a half dose of my cannabis edible before bed. I wake up feeling more relaxed first thing, but as the day goes on? Ooof.
The emergency room doctor ordered a CT scan, an MRI, an EKG, and the typical array of blood and urine tests and is confident I didn’t have a stroke, but because they can only tell me what I didn’t experience and not what I did, I am a little concerned about starting chemotherapy on Monday.
Oh, have I mentioned that yet? It is supposed to be 110mg of temozolomide every day for 28 days starting August 23. And I guess I’m still going to go with that, because if this most recent Not-A-Stroke has anything at all to do with the tumor (and not, say, just the stress of everything right now) I think delaying chemo would be a bad idea.
Plus, I just really want to get it over with.
Anyway, I am being very careful about how much screen time I’m getting each day, so I’m going to cut this post short. I’ve got more to say, but it’ll just have to wait until later.
If you feel like sending some good vibes into the universe, send some out for me and my family because today would’ve been my Dad’s 74th birthday. And it’s definitely hitting me harder than the days that were not his birthday.
Other quick updates and then I’m out: Dan is getting some meds (not THE meds though) on Wednesday, which is a relief. He is also setting up my chemo nest in the guest bedroom, so I’ll have a TV and an Xbox. (It gets lonely back there.) I am still waiting on the ER bill to come through, so please bear with me as I push those fundraising links once again:
Got $10 and want to help Emily? Here are the ways you can donate:
You can also find items I need on my Amazon chemo Wishlist