Here’s what I find frustrating about my predicament: if I over-explain people get bored and irritated and wish I’d just say what I need. If I just say what I need, I’m too bossy and not appreciative enough.
In the absence of other people with brain tumors and TBIs, I find common ground with people who have ADHD or autism. My brain can’t (not won’t; can NOT) process two things at once. And since pain and anxiety are always happening, I get extremely exhausted and extremely frustrated extremely fast.
I was trying to get three things from the fridge for lunch. Oliver was jumping on my rollator, Dan was upset I didn’t find a joke of his funny, and I couldn’t get out of the kitchen because I miscalculated my turn radius. “I can’t do two things at once,” I said for what felt like the hundredth time, “that includes laughing.”
Then I couldn’t get my Rollator—with my lunch and a cat on it—over the threshold between the living room and the bedroom. Dan was saying something behind me (I don’t even know what) and in exasperation, I said “Stop yelling at me!”
Was he actually yelling? No idea. But it felt like knives were being hurled into my ear drums, and my shoulders clenched just a little bit closer to my ears with every unprocessed word that came from behind me.
The door slammed, and Dan’s voice trailed off, “Fine. I won’t talk then.”
I ate my deviled eggs seated on the edge of the bed while muttering, “I don’t need you acting like a five year old.”
From doctors to family to friends, I am acutely aware how I can’t explain myself to normies anymore. It’s stressful and sometimes scary.
No wonder I’m always anxious.
Doctor appointment tomorrow morning—follow-up with the surgeon.
I hear you. I’m sorry.
I can’t imagine the cumulative effect of brain cancer plus chemo brain. I struggle with ADHD/Autism and chemo brain plus you know the medical trauma, anxiety disorder, depression yadda yadda. My brain is soup, my nerves are fried (quite literally in some areas) and I’m nearly non-functional most days. What’s my point? No, really. What the flip was my point? Um. Something supportive. I kinda get it. I’m literally always here if you need a sympathetic ear or eyeball. Voice to text works best. Love you.
Oh, Emily, I’m so sorry. My own brain feels this so much (ruptured aneurysm 5 years ago). Sending love from Indiana.
Thank you ❤️