I Might Have Lupus! Hooray!

I Might Have Lupus! Hooray!

Yesterday's appointment with the rheumatologist went so much better than I was expecting.  "Did you see your lab results?" the NP asked as a way of determining just how much she needed to explain. "I looked at them," I said deflated. "From what I understand,...

Morning Announcements

Morning Announcements

First off, it's Prime Day. Jeff Bezos sucks, but some of us still rely on Amazon. I'm asking for help from people that shop there, not asking people to abandon their convictions. Use that link up there, and if you buy anything today, Amazon's referral program will...

I Might Have Lupus! Hooray!

Yesterday's appointment with the rheumatologist went so much better than I was expecting.  "Did you see your lab results?" the NP asked as a way of determining just how much she needed to...

New Disease Coming Soon

A forty-four year old woman can be absolutely certain that something is the right thing to do and still pout and whine about it. Ask me how I know. My oncologist called and reminded me there was...

We Are This

I'm thinking a lot of things about the shooting at the Trump rally in Pennsylvania, and most of them aren't fit to be published. When the Supreme Court ruled earlier this month on presidential...

I Might Have Lupus! Hooray!

Yesterday's appointment with the rheumatologist went so much better than I was expecting.  "Did you see your lab results?" the NP asked as a way of determining just how much she needed to explain. "I looked at them," I said deflated. "From what I understand,...

Things Don’t Have to Get Worse

I've only taken two 1/2 pills so far, but I feel different inside. Couldn't say for sure if it's the hope or the hydroxychloroquine, but damn. I want food. I feel connected to my memories. I don't feel like I'm as packed-too-painfully tight in my own skin. That's the...

Lupus with an Asterisk

I have to channel all this hope somewhere, so I've been reading and contemplating lupus the last 36 hours or so since my appointment with the rheumatologist. I have been muddling over the best way to characterize what's going on with me healthwise. I want to talk...

I Can’t Be Expected to Title A Post High

What? You think you could title a post high? I spent an hour and a half waiting to see my oncologist yesterday and left without seeing him. I couldn't do it. Couldn't sit in the wheelchair another minute longer. Couldn't handle the stifling exam room. (I can't bear...

Review: Incredibles Strawberry Crunch Bar

Friday, on day two of my migraine, I dipped back into my stash of medical marijuana edibles. I picked out two new-to-me edibles from the dispensary last week. I already reviewed the first---cherry chews from Betty's Eddies. Today's review is for the Incredibles...

Disrespecting Mr. Nelson and SCOTUS

In fifth grade I had this teacher I absolutely could not respect, Mr. Nelson. Though I probably missed out on a lot of interpersonal nuance at the age of 11, the big issue for me then was his wishy-washy demeanor. He played favorites, and I didn't know what a double...

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