Surface temp of my forehead: 96 °
Surface temp of places with the rash: 101°
Putting ice packs on it gives me some relief. Since I can’t take more than one Zyrtec in 24 hrs., doctor told me to try stacking my antihistamines. So Zyrtec, then Claritin a few hours later, then Benadryl.
It’s still spreading, but it’s slowed down some. Only things not affected so far are my face and my legs from knees to toes.
But there is good news! Bacon, egg, and cheese biscuits taste 100% normal this morning.
I can taste the difference between white and red jellybeans today! Jarred salsa smells like heaven, but still tastes like aluminum and burned garlic. Baby steps.
Welcome home flowers and cake.
And just to keep things real for you, because life isn’t just cake and flowers…
Before I left St. Louis, the doc told me my lymphocytes were high or low–whatever is not good. So I am getting a new antibiotic. If I get thrush again, I might scream.
The itchy rash I was whining about now covers about 90% of my body. I’ve got rx hydrocortisone, Benadryl, Gold Bond itch relief lotion. Still miserable.
But I’m miserable at home with Dan. And Boomer & Izzy are super snuggly.
Bad news first: I have the itchy, dreaded chemo/radiation rash.
Good news: I’m going home tomorrow instead of next week because one of my follow-up appointments was changed.
I haven’t seen my own house in 71 days!
On April 12, following my last radiation treatment, I went live on Facebook so that everyone who had been supporting me could watch me ring the final treatment bell in the radiation oncology waiting room at Siteman Cancer Center.
It was freaking emotional, man. The video ends abruptly because I was flooded with emotions and just started crying.
The video of this celebration is public on the Facebook page, if you’d like to retroactively celebrate the occasion with me.
Emily’s Last Radiation Treatment Celebration
Post-bell group photo opp with Dan, my parents, brother, and SIL
28 of 28!!! In the waiting room. Probably another 30-ish minutes before I ring the final treatment bell.
Our commute time to the hospital tomorrow will be 1 minute…and that’s just because I’m slow getting around.
Dan booked a room at the Parkway Hotel across the street from the Siteman Cancer Center so we can sleep in, have Panera for breakfast (also just across the street), and make tomorrow a total party.