A Disappointing Lack of Candy Coffee

A Disappointing Lack of Candy Coffee

I didn’t order a candy coffee with my breakfast this morning. (“Candy coffee” is what my dad called coffee with anything in it that actually made it taste good. He wanted his plain.) I contemplated it, but I slept so well last night, I couldn’t sabotage myself with caffeine today.

Now, if insomnia visits me tonight anyway, I will truly be pissed.

It’s funny because when I was younger, I’d drink caffeine all day long and still sleep so well. But I inadvertently got off the sauce during treatment when everything tasted awful, and now I’m hypersensitive to the stuff.

As the kids say, fuck cancer.

I’ve been tweaking the website and trying to find more affiliate partners the past couple of days, but it’s a pretty slow process. None of these sites are optimized for mobile devices, and it’s a real headache trying to use them on my phone.

Aside: If you’re reading this, ShareASale and Commission Junction, make a mobile app. Pronto. Us disableds deserve easier navigation.

Anyhoo, I realized it has already been two weeks since I sent those e-mail queries for Who You Gonna Believe. I sent about 7 emails total, and so far I’ve just heard back from the one. I have no expectations, though, I’m just reporting in for anyone who’s curious where that stands.

With my new health insurance allowance for OTC stuff, I have ordered compression socks. I got the seamstress tape out and measured my calves and everything. I don’t know if it will help my muscle fatigue or not, but I’m always a little hopeful about these things. I have to be.

Speaking of health insurance, Dan’s old coverage is still in effect. So the appointment we were worried about was covered. At least until the insurance company recognizes their mistake. But I’m not telling those jerks anything. They can figure it out themselves. I figure they owe him a lot more for their previous coverage denials than that one appointment could possibly cost.

Related: the stress of the coverage conundrum had his blood pressure all over the place to the befuddlement of his primary care physician. (The one he likes that he can’t see anymore because he has new insurance.) “This is what anger and uncertainty does. I’ve been stressing about this for a week.”

Put that shit on a bumper sticker.

Say it louder for the people in the back.

One hundred percent.

Meryl Streep standing ovation dot GIF.

12 Long-Term Disability Appeal Tips

12 Long-Term Disability Appeal Tips

I’m not a disability lawyer, and I’m not giving legal advice. I’m just a woman with brain cancer who’s got battle scars from fighting an LTD insurance company and some disability appeal tips.

I created this list of tips for disability insurance recipients by asking what I wish I’d known from the beginning.

Because, from what I’ve learned, cancellation is inevitable.

Don’t talk over the phone.

There are a couple of reasons I suggest this. First, it’s stressful to be put on the spot during an unscheduled phone call when your livelihood is at stake. Avoid phone conversations just for your own peace of mind.

Second, the call is likely to be summarized by the disability insurance claim specialist you talk to rather than transcribed verbatim. That leaves a lot of room for someone to “accidentally” leave out important information or conveniently interpret information in a way that can be used to weasel out of paying your claim.

(Ask me how I know.)

So how do you get your insurer to stop making periodic “check-in” calls and email or write you instead? Just tell them to. I emailed the claims specialist handling my case the following message after she tried to get me to switch back to phone communication:

I will not be speaking with any Lincoln Financial Group representative by phone at this time. All answers can be provided in writing via email and/or hardcopy on company letterhead.

February, 2020

Naturally, she wanted to respond to questions I had over the phone, presumably so there wouldn’t be a written record of her answers. Fortunately, I saw the maneuver for what it was and refused phone calls from that point forward, but I wish now that I would have set this boundary from day one.

Know disability policy terms.

Although I had the foresight to buy a long-term disability insurance policy, I didn’t seriously consider what I’d do if I needed it. So I never read the entire policy while I was still healthy.

(Honestly, I don’t even recall if my employer provided full-text of the policy when I signed up during new-hire orientation. I probably would have had to specifically request it.)

No shame if you haven’t read it closely yet either. Life’s short. But do read it now. If you’re not able, have your spouse or someone else close to you give you the Cliff’s Notes so you’ll know what your responsibilities are when it’s time to file the disability insurance appeal.

For instance, with Lincoln Financial Group policies, you’ll probably be required to complete two administrative appeals before you can sue them.

Yes, it’s as ridiculous as it sounds. My disability insurance company, Lincoln Financial, itself decided two more times if they were wrong about me.

Request your file.

My long-term disability (LTD) policy stipulated that my case would be up for re-evaluation after two years. At that time, I’d have to show that I couldn’t perform ANY occupation in order to continue receiving benefits instead of just my OWN occupation at the time I became disabled.

I wish I’d thought to ask for my file before Lincoln Financial Group started their review process.

By the time they cancelled my long-term disability insurance benefits, the file Lincoln Financial Group had on me was more than 700 pages long.

Trying to pin down errors and omissions in that clunker was a nightmare—all complicated by the stress of not knowing how I was going to pay the mortgage.

POV: Waiting at the doctor’s office. Still disabled.

The file your disability insurance carrier keeps is an unwieldy thing that can easily reach thousands of pages in a couple years’ time. (Not everything is relevant. They want it to be confusing.)

If you can identify even a couple of omissions in your record before you’re in financial crisis, you’ll be several steps ahead of where I was when the clock started ticking on my appeal.

In my case, Lincoln Financial Group didn’t even mail my file the first time I requested it. I had to email a claims specialist several times and finally demand she overnight the file and prove she did it by giving me a tracking number. By that time, almost two weeks had passed.

Important note: By law, we policyholders have a deadline for filing our appeal(s). This should go without saying, but always know what your deadlines are and ALWAYS submit on time! By not mailing my file, LFG was eating into my deadline, likely hoping they’d get me to miss it completely.

Review your file.

Once you get the file, dig in. Inaccuracies weren’t frequent, but there were some. The big thing was learning how much my oncologist’s office had left out.

Because I signed a medical records release, LFG requested documents directly from my doctor. And the doctor’s office sent them directly to LFG without my having a chance to give them a once over.

And that’s exactly want your insurer wants to happen. You can insist your doctor’s office provide you copies of the info they send, but you can’t count on them to follow through.

The incomplete records your doctor keeps will help the insurance company paint a picture that works to their advantage. I imagine there are a lot of cases where a patient’s disabilities are not noted in medical records.

A personal example: I suffer from disabling vertigo and am at a high risk of falling. I can’t walk more than a couple of steps without using a mobility device or grabbing something to stabilize me. I also suffer from extreme cancer-related fatigue and can’t walk or stand for extended periods.

But my doctor and the NP never documented this. They never even ask if I could. In fact, the doctor never saw me walk. He only ever saw me seated in an exam room chair.

There was so much information missing from my medical records that the forms he sent to the insurance company made it look like my tumor hardly affected me.

My primary physician’s records were significantly more thorough, so naturally the doctors hired to conduct a review of my case avoided talking to her and downplayed their relevance. The insurance company either didn’t request records from her as frequently or they didn’t include them in my file.

Request documentation from your doctors.

The remedy to the previously mentioned problem was for me to spell it all out for my physicians. And, I’ll be blunt, my oncologist was pretty good at treating cancer and reading lab results, but he was horrible when it came to the softer science of cancer treatment—identifying and documenting his patient’s needs. I’m not saying he’s entirely to blame for that; it’s just a fact.

When you find a physician can’t be bothered to do a thorough job, stop wasting your time on them. Focus on making it as easy as possible for the good ones to document your case.

The more thorough your file before disability appeal starts, the better. When you get an updated file, check to verify the supporting documents you and your doctors send are being added.

Selfie of a woman in a car with a dog behind her in the back seat
Me with my emotional support doggo, Boomer.

Hire an attorney.

The appeals process is essentially legalized torture. If you can find an attorney to mange your claim for a percentage of your benefit check AND you can afford it, it’s probably worth having one on retainer immediately.

Why? Because when the insurance company hires doctors halfway across the country to “independently review” your file and gaslight you, dealing with that additional stress while not having money will wreck your mental health. Trust me.

If you have an attorney intercepting all communication, you can keep the stress to a minimum. And, who knows, maybe even prevent cancellation in the first place.

Research the appeals process.

This tip is most relevant for people who are going to manage an appeal on their own, without any legal representation or guidance, like I did for my first administrative appeal.

The point is to learn as much as you can about how an administrative appeal works BEFORE the clock starts ticking. Forty-five days to write and submit your appeal might seem like plenty of time, but I promise you it’s not.

Not only will you be trying to gather documents, requesting supplemental records from your doctors, and making requests for information from a hostile insurance company, you will also still be living with whatever sickness or injury disabled you in the first place and the inherent barriers and obstacles associated with it.

Create a hard copy file.

Save everything, not just the stuff your LTD insurer sends you. You are likely going to need your most recent year’s taxes, your initial award letter and your amount of benefit letter from SSDI (if applicable) in addition to all the strictly medical stuff.

If your doctor filled out the form for you to get an accessible parking placard, keep that too. You get the idea.

These things will be asked for frequently as part of your appeal, but also? If you need to apply for food assistance or other financial support while your claim is going unpaid, you’ll have everything handy already.

If you have access to a scanner, scan your hard copies. Scan the envelope the documents came in (for a record of the postmark) and the documents themselves in the same file.

Article: Ultimate Guide to Helping a Loved One with Brain Cancer

Save files as a PDF and choose a detailed file name like “Lincoln Financial Group Notice of Cancellation 20JAN2019,” and consider it a gift to your future self.

Mark the date you receive documents.

If your disability insurance company is diabolical enough (ha ha—“if”), they will intentionally delay getting vital information to you, as Lincoln Financial Group did to me on several occasions.

Every physical letter they ever sent was dated about 5-7 days earlier than it was postmarked and 7-10 days earlier than I actually received it. They were either backdating correspondence or holding it before putting it in the mail.

If you should need to prove bad faith on the part of your disability insurance company, having this information will come in handy. Of course, if you’ve already scanned the postmarked envelope, you should be covered.

But in my house at least, empty envelopes have a way of getting separated from the documents they once contained. Writing the date received on the document itself just gives you a little extra insurance. Pardon the pun.

Create an electronic folder.

Again, being organized now will save you time and heartache later. If the documents you download from your web browser save to one folder and the documents you scan save to another folder, and the documents you view on mobile save to an entirely different device, finding what you need when you need it won’t be easy.

Create one central folder where everything goes, and create descriptive subfolders if (okay, when) things start to get unwieldy.

BONUS TIP: Apply labels or use folders in your email application to easily find messages again later. Gmail, for example, will automatically apply labels to messages received from specific email addresses.  

Create a digital back-up.

You know the drill. Make a backup of your files regularly and save them to Dropbox or Google Drive or whatever cloud storage account you have and/or save them to an external thumb or hard drive.

Devices fail, and you don’t want to risk losing all your documentation to a computer that dies on you at the worst possible moment. Even if you can recover the data on your device, you don’t want to lose precious time while the appeals clock is ticking.

Expect doctors you have never met to lie.

Even though I’ve had some harrowing experiences with doctors in years leading to my diagnosis, I still was not emotionally prepared for Lincoln Financial Group hiring “experts” to lie about my condition.

Title image for post "My New Primary Doctor" featuring faceless doctor holding a medical chart.

Doctors who take on this kind of work have cranked up their clinical detachment to 11—to the point they are no longer helpfully objective but harmfully biased.

They don’t think of you as a person when they’re writing up these opinions for the insurance overlords. At best they see you as an interesting set of diagnoses and vital statistics.

The impartial truth is secondary to their bank account balance and ability to land similar contract work in the future. Don’t let the bastards get you. Hell, if you’ve got the fight in you, name them.

That’s all I’ve got for now. Just remember that the overarching theme here is to anticipate filing an appeal. Unwarranted cancellations are the rule, not the exception. Your disability insurance company will always try to get out of making payments. Follow these disability appeal tips and be prepared.

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