How to Get Your Doctor to Listen: Tips from a Patient Who’s Been There
As a patient who was horribly misdiagnosed (they told me I had fibromyalgia but it was really a...
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Tag: Fibromyalgia
A Thing I Did While Growing a Brain Tumor
Facebook tells me that on this day three years ago, Dan and I attended the Dave Matthews Band...
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Fibromyalgia Misdiagnosis: Surprise, It’s a Brain Tumor
On February 2 the general consensus among my doctors was that I wasn’t eating right or exercising enough. On February 3 the general consensus among my doctors was “Holy, shit. You shouldn’t be able to do that”
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Emily Answers Your Brain Tumor Related FAQs
OMG! I just heard. How are you? The answer to this one changes every 5 to 30 seconds. You know...
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Fibromyalgia Update: Iron, Sleep Study, Nexium
I haven’t been feeling well lately. I know, right? You are so surprised. Thought I’d...
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More Medical Tests: Could I Have Sleep Apnea?
Three days ago, I was so close to canceling my sleep consult appointment. Like...
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Watching Shit Burn
Crisis averted. Nothing caught on fire. But I was smacked by the depressing reality that I can’t do anything and I certainly can’t do anything quickly.
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A Different Kind of Meltdown: Heat and Fatigue
Back in the day, doctors would actually use a hot bath test to diagnose MS! Holy shit!
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Good, Good, Good…Leg Vibrations
I woke up at 5:12 a.m. today with the uncontrollable urge to stretch my limbs. I stretched, and as...
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Why I Want to See an MS Doctor, Part 4
Yes, I realize that I’ve pondered a pretty lengthy list of possible diseases and conditions...
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Why I Want to See an MS Doctor, Part 3
So, where was I? Or rather, what part of the story to tell next? This is not a linear tale, if you hadn’t noticed.
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Perceiving Pain & The Shortest Flare
I flared yesterday, and it’s gone today. Which means that I was a 7 or 8 on the pain...
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