Lung Biopsy Pre-admission

Lung Biopsy Pre-admission

Yesterday was a roller coaster. And not the smooth, new, metal kind. But the old, rickety, wooden kind that makes you kiss the ground when you when you finally walk away from it—newly appreciative of overpriced blown glass and tacky gift shop trinkets.

I woke up about 5:00 am, dehydrated and dreading my appointments at the hospital. The cortisol was coursing, and my neck and shoulders were tense. I tried to meditate the pain and anxiety away. 

By which I mean I was doomed from the start. I knew instinctively if I had to try that hard to calm down it wasn’t going to take, any of it. 

Mom drove me to St. E’s in O’Fallon yesterday. Dan took me Thursday. It’s about a 30-minute drive, but it’s pretty excruciating for me. The muscles in my neck tense, making it impossible to turn my head for hours. I don’t say so out loud because it doesn’t change anything, but I fucking hate being in a car.

I went through lung biopsy pre-admission testing for next week’s main event. (If you’re new here: They found a nodule on my lung while checking in on my very angry lymph nodes.)

The first appointment included a thorough recounting of my medical history, rattling off my current medications, standard OR procedure and anesthesia explanations, and a CBC blood test.

It was a two-stick day. Curse the vein gods.

My fellow chronics know how disappointing it is when the nurse has to stick the back of your hand because she can’t find a good vein in your right elbow crook and the one that seemed cooperative in your left elbow crook thought it’d be cute at the last second and roll over and play dead.

(There wasn’t even any blood on the elbow crook bandage when I got home. Might explain why my left arm is always cold.)

When I finished up with that stuff, I went to imaging for a CT of my lungs. The tech had to hug me onto the table. I couldn’t move my legs, and I was dizzy from all the time I’d spent slouched in various transport chairs. She was great, but I was so very sad.

“What is this OSF?” She was asking where I had my last scan, but I was confused.

“There was an OSF hospital in Champaign, but I haven’t lived there for almost two years.” I squinted hard trying to remember while she looked again at her paper. “When do they say I had it?”

“Just last month.”

“Oh,” I said. “That was just across the street at the cancer center. But it’s not called OSF. I don’t know what that’s about.” I remained baffled, but I said the magic word: cancer. Suddenly she understood all manner of things that hadn’t been said. 

“Cancer.” It was nice shorthand, considering I was extremely hoarse and still hadn’t recovered from yesterday’s lung function test. Not that the spirometry affected my voice, I was just too fatigued to talk.

The part I could do was a lot like this.

(I couldn’t even complete the entire test. There was a pulse oximeter component that was supposed to involve me shuffling around with a walker. I gripped the walker handles so tight, I cut off blood flow to my finger. That’s how anxious I am about falling. The nurse was like “Yeah, no. This isn’t safe for you. I’ll let Dr. Pulmonologist know.”)

Back to Friday though. When everything was done I was hungry, thirsty, and so extremely tired. So I ate something  when I got home, and 30 minutes after lunch had to deal with IBS-D.

Usually, when things go acceptably, I plop my butt on the toilet and sing while laughing “looks like we made it.” I did not sing yesterday. I didn’t laugh either.

I was too physically exhausted to control certain muscle groups. Dan is a fucking saint. I don’t want to talk about the details.

That was nadir on the roller coaster track. But the ascent came! I’ll tell you about it next time. I need a nap, and this feels long.

Update: the lung nodule is gone.

Life is What Happens

Life is What Happens

They say life is what happens when you’re busy making other plans. I say life is what happens when you’re trying desperately not to make medical appointments.

Remember how I wanted the month of August off? Well, I have four new appointments now, five total. The one with Dr. Oncologist has been on the books for about a week. And the rest are all a result of seeing Dr. Pulmonologist yesterday.

We discussed the nodule that showed up on my last CT, and he went over the images with me and Dan.

Before I lose everyone who’s tired of the medical crap and the anxiety stuff, a plug for the GoFundMe again. Things are about to get hella more expensive. Currently in the works: a lung function test, a CT and pre-admission testing for a lung biopsy, the actual lung biopsy, and a follow-up with Dr. Pulmonologist.

Oy.

“All of this is necessary, right?” I asked Dan while he got Moana rolling for me. (Watching makes me feel better.) I knew the answer, but needed Dan to confirm because I really do not want to do any of this. I’m looking for excuses.

“Yes. Listen to your doctors, Swiss,” he said while angling the TV toward the bed.

Dr. Pulmonologist is another of the good ones, by the way. I’ve been really lucky since we moved at the end of 2022.

Unfortunately, the string of bad doctors I encountered prior to my brain cancer diagnosis in 2017 really set the tone for my growing anxiety. I try to remember now to be fair to new doctors and to myself, but sometimes the body and the anxious brain just go on autopilot. I get all panicky without justification.

That’s probably all clear and I’m overexplaining myself. That’s the anxiety. It overexplains symptoms too. Trying to figure out how to be heard at doctor appointments will fuck you up, kids. Bad.

I’m working on it. Still. In fact, I think the only reason I made it through yesterday was because I was working on it by listening to a podcast episode from Tara Brach called Embodied Presence (Part 2).

Give it a listen if you’re dealing with chronic pain, emotional trauma, or if you want to understand how to deal with either or both for future reference. If I try to paraphrase, the good bits of her talk will be lost, and I will be writing this blog post forever.

Buckle in or bail, y’all. I’m not editing this for meanders.

One of the more incredible moments from yesterday came when I was describing my symptoms and my anxiety. I relayed to the doctor how I felt my shallow breathing and excessive fatigue were probably related to my anxiety, the pain in my muscles, and the swollen abdomen from an extreme bout with IBS.

You know what he said? He said, “You didn’t ask for this and it’s my job to do the worrying here.”

I might have cried if I could believe my own ears.

He also reminded me how closely IBS and anxiety were connected and assured me there were things that could help me breathe easier once we knew what we were dealing with.

This might all seem very obvious to others, I don’t know, but to me and my anxiety it was a revelation.

So, anyway, the nodule is on my right lobe and is about 9mm—smaller than the cheerio but bigger than the head of the thumbtack on the poster hanging on the back of the exam room door.

If the nodule goes away*, they won’t need to do the robot-assisted bronchoscopy. Cross your fingers, toes, eyeballs, hearts, and whatever else you got, people.

* Possible if it’s from an infection or something, but not likely.

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