by Emily Suess | Nov 20, 2019 | Brain Tumor, Fibromyalgia
As a patient who was horribly misdiagnosed (they told me I had fibromyalgia but it was really a brain tumor) for more than two years, I learned a thing or two about how to get your doctor to listen. Going through life with a misdiagnosis—or no diagnosis at all—is as...
by Emily Suess | Jul 2, 2017 | Brain Tumor, Fibromyalgia
Facebook tells me that on this day three years ago, Dan and I attended the Dave Matthews Band concert at Summerfest in Milwaukee. I remember it well. It was raining and only like 50° F outside. We could see our breath. In July. Fuckin’ Milwaukee, guys. Anyway,...
by Emily Suess | May 1, 2017 | Brain Tumor, Fibromyalgia
Whew! The past 72 hours have been utter shit for me. I’d explain why, but I’m going to just wave my Tumor! sign and leave it at that. There’s something else I want to write about now: my fibromyalgia misdiagnosis. Did you know that May is Brain...
by Emily Suess | Apr 23, 2017 | Brain Tumor, Fibromyalgia
These are the MRI reports my primary physician had in-hand when she broke the news to me on February 3, 2017 at 1:30 p.m. that I had a brain tumor. I’ll write more about how that experience went and how it affected me later. But for now, here’s the medical...
by Emily Suess | Apr 22, 2017 | Fibromyalgia
Something has given me an itchy rash from hell. You know you’re in for a medically challenging day when your oncologist wants to take you off a drug you’ve never been prescribed and have never taken because it’s been known to cause a rash…...
by Emily Suess | Apr 20, 2017 | Fibromyalgia
Remember how I said at least the rash wasn’t on my face? Yeah, guess what I woke up to this morning? My left eyelid is so swollen, it’s like I installed an awning over my eye. I’m fresh out of big girl panties and have scheduled the rest of the day...
