Category: Fibromyalgia

How to Get Your Doctor to Listen: Tips from a Patient Who’s Been There

by Emily Suess | Nov 20, 2019 | Brain Tumor, Fibromyalgia | 0 |

As a patient who was horribly misdiagnosed (they told me I had fibromyalgia but it was really a...

A Thing I Did While Growing a Brain Tumor

by Emily Suess | Jul 2, 2017 | Brain Tumor, Fibromyalgia | 6 |

Facebook tells me that on this day three years ago, Dan and I attended the Dave Matthews Band...

Fibromyalgia Misdiagnosis: Surprise, It’s a Brain Tumor

by Emily Suess | May 1, 2017 | Brain Tumor, Fibromyalgia | 11 |

On February 2 the general consensus among my doctors was that I wasn’t eating right or exercising enough. On February 3 the general consensus among my doctors was “Holy, shit. You shouldn’t be able to do that”

My First MRI Results

by Emily Suess | Apr 23, 2017 | Brain Tumor, Fibromyalgia | 0 |

These are the MRI reports my primary physician had in-hand when she broke the news to me on February 3, 2017 at 1:30 p.m. that I had a brain tumor.

Cancer is Complicated

by Emily Suess | Apr 22, 2017 | Fibromyalgia | 0 |

Something has given me an itchy rash from hell. You know you’re in for a medically challenging day when your oncologist wants to take you off a drug you’ve never been prescribed and have never taken because...

Rash, Rash Everywhere

by Emily Suess | Apr 20, 2017 | Fibromyalgia | 0 |

Remember how I said at least the rash wasn’t on my face? Yeah, guess what I woke up to this morning? My left eyelid is so swollen, it’s like I installed an awning over my eye. I’m fresh out of big girl panties...

Another Day, Another Radiation Treatment

by Emily Suess | Mar 31, 2017 | Brain Tumor, Fibromyalgia | 0 |

Radiation treatment 20 of 28. This concludes week 4. The swelling is painful, guys. I mean yeah, I...

I Get Around

by Emily Suess | Mar 31, 2017 | Brain Tumor, Fibromyalgia | 0 |

I’ve been awake since 3:30 this morning, but I’m feeling surprisingly spry. Walking around the house without the walker, just steadying myself every few steps by grabbing furniture and stuff. I am slow and...

How my Brain Tumor Affects My Brain

by Emily Suess | Mar 30, 2017 | Brain Tumor, Fibromyalgia | 1 |

Part of my tumor is sitting on my pons. Here’s what that little part of the brain does, according to Heathline: The pons is a portion of the brain stem, located above the medulla oblongata and below the midbrain. Although...

Some Info about My Brain Tumor

by Emily Suess | Mar 26, 2017 | Brain Tumor, Fibromyalgia | 0 |

If you’re up for some light reading. Mine is a grade 2 (diffuse) astrocytoma, located on my brain stem. I’m entering the “that’s fascinating” phase of my little predicament. The linked...

Swear Word Coloring Book Therapy

by Emily Suess | Mar 26, 2017 | Brain Tumor, Fibromyalgia | 0 |

I began swear word coloring therapy today! Have to take lots of breaks because of poor grip strength. Also, the marker doesn’t always land where I think I’m placing it. But if I don’t practice, it’ll only...