How to Get Your Doctor to Listen: Tips from a Patient Who’s Been There
As a patient who was horribly misdiagnosed (they told me I had fibromyalgia but it was really a...
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Category: Fibromyalgia
A Thing I Did While Growing a Brain Tumor
Facebook tells me that on this day three years ago, Dan and I attended the Dave Matthews Band...
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Fibromyalgia Misdiagnosis: Surprise, It’s a Brain Tumor
On February 2 the general consensus among my doctors was that I wasn’t eating right or exercising enough. On February 3 the general consensus among my doctors was “Holy, shit. You shouldn’t be able to do that”
Read MoreMy First MRI Results
These are the MRI reports my primary physician had in-hand when she broke the news to me on February 3, 2017 at 1:30 p.m. that I had a brain tumor.
Read MoreCancer is Complicated
Something has given me an itchy rash from hell. You know you’re in for a medically challenging day when your oncologist wants to take you off a drug you’ve never been prescribed and have never taken because...
Read MoreRash, Rash Everywhere
Remember how I said at least the rash wasn’t on my face? Yeah, guess what I woke up to this morning? My left eyelid is so swollen, it’s like I installed an awning over my eye. I’m fresh out of big girl panties...
Read MoreAnother Day, Another Radiation Treatment
Radiation treatment 20 of 28. This concludes week 4. The swelling is painful, guys. I mean yeah, I weigh more than I did a month ago, but my skin is stretched so thin I feel like I’m going to pop. Steroids are a blessing...
Read MoreI Get Around
I’ve been awake since 3:30 this morning, but I’m feeling surprisingly spry. Walking around the house without the walker, just steadying myself every few steps by grabbing furniture and stuff. I am slow and...
Read MoreHow my Brain Tumor Affects My Brain
Part of my tumor is sitting on my pons. Here’s what that little part of the brain does, according to Heathline: The pons is a portion of the brain stem, located above the medulla oblongata and below the midbrain. Although...
Read MoreSome Info about My Brain Tumor
If you’re up for some light reading. Mine is a grade 2 (diffuse) astrocytoma, located on my brain stem. I’m entering the “that’s fascinating” phase of my little predicament. The linked...
Read MoreSwear Word Coloring Book Therapy
I began swear word coloring therapy today! Have to take lots of breaks because of poor grip strength. Also, the marker doesn’t always land where I think I’m placing it. But if I don’t practice, it’ll only...
Read MoreBrain Tumor Radiation Treatment #15
15 of 28, 3 full weeks complete, and officially more than halfway done with radiation. w00t! I have contracted what I’m calling the 4 o’clock flu. Because I am getting sick at that time every day now. Pretty sure...
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