I had a phone visit with my palliative care PRN this morning. Long story short I’m going to take a short course of prednisone during CZT training to make sure I can do the thing. Because it’s only a week’s worth of generic ‘roids at a low dose, my Rx only costs about $4.
Which brings me to the whole “Medicare can negotiate drug prices” part of the Inflation Reduction Act. I’ve read in a few places that it will benefit seniors specifically, but I’m not sure if disabled people on Medicare are just casually being erased from the headlines again, or if I’m still extra screwed. I’m trying to find an answer.
This is just one reason why I’m still engaged politically when I should be “focusing on getting better.” My shingles vaccines, which I’ve mentioned before, cost $200 EACH, for example, and I’m not allowed to make enough money for our household to survive or they’ll cut my disability income completely and we’ll have even less than not enough.
Maybe if the “safety net” wasn’t an all or nothing proposition?
Bottom line, if anyone out there wants me to shut up about it already (and, yes, people do sometimes say it out loud) they can kiss my astrocytoma.
I’m relieved it’s only $4 for this prescription. The antibiotic ointment my oncologist prescribed a couple of weeks ago cost $35. Not exactly in the budget, and I prefer to put my creativity into Zentangling—not wondering how to afford medicine.
I know these posts aren’t fun for people to read. They are much less fun to write. But no one is going to do it for me. This is as boot-strappy as it gets for the girl who grew up in the most polluted county in Indiana. (In case someone tries to blame my cellphone usage for my brain cancer again instead of spending equal time wondering if our environmental regulations are too lax.)
I know, I know. Blaming me is so much easier.
Definitely cell phone usage. That’s why every single other person you know also had brain cancer…
Right? I wasn’t even an early adopter. 😂
How dare you have a medical issue that you can’t afford! Not blaming you, blaming your country for not providing care and meds free of charge for someone with brain cancer.
It’s simply outrageous what the US does to sick people. All I can say is at least you weren’t just dropped off on skid row ,wearing a hospital gown, like they did in the documentary Sicko. My thoughts are with you ❤️
I think we’ve got too many greedy people convincing just enough selfish people that it will never happen to them. Pretty sickening. (Pun intended.)
This country is horrid on so many levels. As are too many people. You shouldn’t have to fight so hard to just survive.
Maybe one day enough people will agree. Fingers, toes, and eyes crossed.